Saturday, 15 October 2016

Jan K. Orndorff - My Transplant Blog

Jan Orndorff passed away on 7 July 2016 after a lengthy struggle against pulmonary fibrosis, which was diagnosed in 2002. In 2011, she underwent a lung transplant, but after an initial success she lost the battle against rejection, and particularly as a result of the medication used. Jan was very active in raising awareness of the condition, a founding member of the Pulmonary Fibrosis Association. She leaves a widower, John, three children, 6 grandchildren and a huge legacy in terms of her efforts for PF sufferers.

1 comment:

Ron Frank said...


I can remember flipping through pages and reading storyboards of comic books watching Superman swoop in and save the day. Watching movies about Batman and all of the superheroes filled my world with hope, that superheroes, or beings with superpowers actually exist, and are working just beyond our line of sight waiting for that moment, to Battle a super villain and save us mortals. I still remember the day I read a news article that Superman (a.k.a. Christopher Reeves) fell off a horse and broke his neck. At this point I was a teenager and no longer truly believed superheroes existed at least not those who wore capes, but I was saddened. Later on in years I realized that superheroes did not wear capes, they wore:

Kevlar helmets & load bearing vest carrying Riffles and walking, driving, or dropping into the thick of battle protecting those who are being bullied. Uniforms proudly standing between anarchy and civilization, or rushing into a burning building to save a life, and aprons and smiles, armed with band aids and kisses. Sometimes they wear oxygen tubes...

...In 2002, a woman, Jan Orndorff (aka Mom), was diagnosed with Pulmonary Fibrosis, a terminal disease that hardens the lungs. The Drs, told her she'd have 2.5 years to live and she needs to get her affairs in order. Devastating news for the family as you can imagine. She searched for information, but other than what the Pulmonologist gave her, there wasn't any. So she started a support group, which later turned into a 501.3c Pulmonary Fibrosis Association of Texas (PFAT), and later, when their help reached patients in other states and countries became Pulmonary Fibrosis Association, Inc.
What made them special was their intent wasn't to raise money to find a cure, and its primary goal wasn't to raise awareness, instead their primary goal was to raise money for patients without insurance, or otherwise couldn't afford Oxygen and the expensive medications. Now, more than 14 years later, after helping thousands of patients and their families through this brutal disease. This world is a better place because of her. Mom always encouraged me to stay the course, My success as a Christian, husband, father, employee, friend and man is testament to her patients, love, hope, and Faith.

Thank you for not forgetting Mom. We never will

Ron (R.P.)